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The
Pick's
Disease Support Group
For carers of frontotemporal dementia: Pick's Disease,
Frontal Lobe Degeneration, Dementia with Lewy Bodies,
Corticobasal Degeneration and Alcohol Related Dementia.
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PLEASE NOTE: OUR WEB SITE IS UNDERGOING A COMPLETE OVERHAUL AND RE-DESIGN. WE WILL DO OUR BEST TO KEEP THE CURRENT SITE UP-TO-DATE IN THE MEANTIME.
THANK YOU FOR YOUR PATIENCE.
Planning a future for
carers is hard. There are few facilities tailored for the younger
sufferer, particularly for people with Pick's Disease, which adds to the
distress and burden that this and other similar terrible diseases cause.
PDSG puts you in touch with people who understand.
The group meets several times a year in the United Kingdom and also
produces a regular newsletter which is always available on the internet.
(For additional resources in the US, check this link)
Newsletters
Once per quarter we publish a newsletter which is available on
the web. It contains information on the group, meeting reports,
carers' own experiences, and articles by professionals caring
for Pick's disease patients. Click here
to view the latest edition or review the archives. |
Membership
Forum
Early in 1999, we started a mailing list/discussion forum for
Pick's Support. This allows you to post any questions and to
follow other discussion either via the YahooGroups web site
(formerly eGroups) or via email. This is one of the richest
sources of personal experience, problem sharing and collective
understanding of the various diseases that we support. In the
first three years, with almost 500 members at any one time, more
than 15,000 messages have been posted.
To view messages and/or post messages, you need to be a member,
click here
to subscribe. |

Click to subscribe
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Events
Each year PDSG holds regular meetings in both London and
Liverpool as well as other events throughout the UK. See our new
meetings
web site for more details. |
Contacts
If you need to contact anyone at the Pick's Disease Support
Group, here's the place to find out the main Telephone Numbers
and E-mail addresses of the organisers.
Some members of the
Pick's Disease Support Group have generously agreed to make
their home telephone number
or e-mail addresses
available. They have said that they would not mind other carers
in a similar position contacting them for advice, or just a
chat. |
Resources
Check out our new
Caregiver Stories
There are some excellent sites on the internet, but most carers
don't have time to search them out, that's why we've done it for
you - click here to
find out more...
Courtesy of CANDID and our own members, we have also produced a
brand new Booklet as
well as some (older) information FactSheets,
providing a variety of essential information for caregivers. |
Member
Articles
Pick's Disease and
other Frontotemporal Dementias - article reproduced by
kind permission from Geriatrics
and Aging 2002, Volume 5, Number 2: 34-38 (www.geriatricsand
aging.ca).
Frontotemporal
Dementia - article reproduced by kind permission of the
John Douglas French Center for
Alzheimer's Disease
Caregivers' stories
from the regular newsletters have been consolidated into a
single page.
Home Alone - Cause for Alarm by David Hackney - A
technological solution to solving the problems of a wandering
parent.
Poetry.
If you have an
article you would like to be on our website please e-mail Graham
Ward
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