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The
Pick's Disease Support Group 


For carers of frontotemporal dementia: Pick's Disease, Frontal Lobe Degeneration, Dementia with Lewy Bodies, Corticobasal Degeneration and Alcohol Related Dementia.


PLEASE NOTE: OUR WEB SITE IS UNDERGOING A COMPLETE OVERHAUL AND RE-DESIGN.
WE WILL DO OUR BEST TO KEEP THE CURRENT SITE UP-TO-DATE IN THE MEANTIME.
THANK YOU FOR YOUR PATIENCE.

Planning a future for carers is hard. There are few facilities tailored for the younger sufferer, particularly for people with Pick's Disease, which adds to the distress and burden that this and other similar terrible diseases cause. PDSG puts you in touch with people who understand.
The group meets several times a year in the United Kingdom and also produces a regular newsletter which is always available on the internet.
(For additional resources in the US, check this link)


Newsletters
Once per quarter we publish a newsletter which is available on the web. It contains information on the group, meeting reports, carers' own experiences, and articles by professionals caring for Pick's disease patients. Click here to view the latest edition or review the archives.
Membership Forum
Early in 1999, we started a mailing list/discussion forum for Pick's Support. This allows you to post any questions and to follow other discussion either via the YahooGroups web site (formerly eGroups) or via email. This is one of the richest sources of personal experience, problem sharing and collective understanding of the various diseases that we support. In the first three years, with almost 500 members at any one time, more than 15,000 messages have been posted.
To view messages and/or post messages, you need to be a member, click here to subscribe.



Click to subscribe

Events
Each year PDSG holds regular meetings in both London and Liverpool as well as other events throughout the UK. See our
new meetings web site for more details.
Contacts
If you need to contact anyone at the Pick's Disease Support Group, here's the place to find out the main Telephone Numbers and E-mail addresses of the organisers.
Some members of the Pick's Disease Support Group have generously agreed to make their home telephone number or e-mail addresses available. They have said that they would not mind other carers in a similar position contacting them for advice, or just a chat.
Resources
Check out our
new Caregiver Stories
There are some excellent sites on the internet, but most carers don't have time to search them out, that's why we've done it for you  - click here to find out more...
Courtesy of CANDID and our own members, we have also produced a brand new Booklet as well as some (older) information FactSheets, providing a variety of essential information for caregivers.
Member Articles
Pick's Disease and other Frontotemporal Dementias - article reproduced by kind permission from
Geriatrics and Aging 2002, Volume 5, Number 2: 34-38 (www.geriatricsand aging.ca).
Frontotemporal Dementia - article reproduced by kind permission of the John Douglas French Center for Alzheimer's Disease
Caregivers' stories from the regular newsletters have been consolidated into a single page.
Home Alone - Cause for Alarm
by David Hackney - A technological solution to solving the problems of a wandering parent.
Poetry.

If you have an article you would like to be on our website please e-mail Graham Ward


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