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Newsletters

Each year the PDSG produces a number of newsletters - articles are now also sorted by category - see our collected stories by Caregivers.



All the newsletters are now available on the internet, it saves printing costs for us if you can access the newsletters on this site.

Volume 10,#3 - Nov 2004

Editorial - BBC THANKYOU!
Direct Payments - Jaki Brown
Book Review - Carole Ivey

Research Study Participants Request - Bronwyn Parry, Julie Jessop and Anji Wilson
Young People - Volunteers Needed
Contact Details

Volume 10,#2 - May 2004

Essential Gossip - Penelope Roques
Another Television Programme
Helping People Who have difficulty deciding for Themselves
Forthcoming Events
Contact Details

Volume 10,#1 - February 2004

Anglo-French Link - Penelope Roques
Getting to know your regional contacts
Tip from Peter Bartholomew
Another Television Programme
Pick's but no choice - John Nicholas
Forthcoming Events
Contact Details

Volume 9,#4 - November 2003

Incontinence, Colin Binnie
Volunteers Wanted
AGM 2004
Moving On - Carol Jennings
Anglo French Link - Penelope Roques
Forthcoming Events
Contact Details

Volume 9,#3 - August 2003

The Changing Face of Pick’s Disease, Jim Lowe
PDSG Booklet
Rita - Leslie Laycok
Postscript - Leslie Laycock
Forthcoming Events
Contact Details

Volume 9,#2 - May 2003

Editorial
Volunteers wanted for research into familial Pick’s disease and frontotemporal lobar degeneration dementia
Val's Journey through the Pick's Labyrinth - The End
Forthcoming Events
Contact Details

Volume 9,#1 - February 2003

Editorial
Brain donation for research into Pick’s disease and related dementias
Val's Journey through the Pick's Labyrinth - The Middle
Forthcoming Events
AGM
Contact Details

Volume 8,#4 - November 2002

Trying to get a diagnosis - a positive outcome
Good Hospital Practice
Val's Journey through the Pick's Labyrinth - The Beginning
Forthcoming Events
AGM
Contact Details

Volume 8,#3 - August 2002

Trying to get a diagnosis
Alors!
Jack
Terry
Notices
Hospital Difficulties
Forthcoming Events
Contact Details

Volume 8,#2 - May 2002

Rita - April 2002
Challenging Behaviour and Dementia - Can we do better - Part 2
When 2 or 3 (or more) are gathered together
Eating Problems - Check your cupboards
Notices
Editorial
Forthcoming Events
Contact Details

Volume 8,#1 - February 2002

The Effects of Caring
Cup Cakes
PDSG AGM - 2002
Challenging Behaviour & Dementia - Can we do better?
Where there's a Will, there's a way
Forthcoming Events
Contact Details

Volume 7,#4 - November 2001

Terry's Story
Long. Dark Winter Evenings
PDSG AGM - 2002
Noticeboard
Forthcoming Events
Contact Details

Volume 7,#3 - August 2001

Research into the Tauopathies
Rita
London Meeting
Essential steps that should be considered before a crisis arises
Information about claiming Disability Living Allowance
Forthcoming Events
Contact Details

Volume 7,#2 - May 2001

Editorial
Our Anniversary
Nottingham & London Regional Get Togethers
A-Z of Obsessions
A Message from the Chairman
Spreading the Word
Contact Details
Forthcoming Events

Volume 7,#1 - February 2001

Editorial
Note from the Chairman
FTD/Pick's Stages and Progression
The Admiral Nurses
Forthcoming Events
Contact Details
Fundraising

Volume 6,#4 - November 2000

Editorial
Poetry, 'Have You Seen My Sister?'
Barry
Useful Tip for Eating
Forthcoming Events
Contact Details

Volume 6,#3 - August 2000

Alcohol Related Dementia
Milton Keynes Early Onset Dementia Project
French Exchange
Music Therapy
Forthcoming Events
Contact Details

Volume 6,#2 - May 2000

Pick's Disease Factsheet
The Latest PDSG Meeting
London Marathon - Update
Gossip Column from Penelope
Time to Let Go?
Regards the AGM
Forthcoming Events
An Advert to Caregivers
Contact Details

Volume 6,#1 - February 2000

Dementia with Lewy Bodies
Short Breaks
Annual General Meeting 2000
Noticeboard - Did You Know?
Jill & Richard
Forthcoming Events
London Marathon
Contact Details

Volume 5,#3 - October 1999

Caring at a Distance 
Communication 
Where is the Milk?
Tribute to Mum 
Younger Persons Network 
September Meeting 
Contact Details

Volume 5,#2 - July 1999

PDSG Outings and Gossip Corner
Jan Greet - A Carer's Story
Post-Apocalypse
The Next Young Person's Day
Philadelphia Conference
Contact Details

Volume 5,#1 - April 1999

Genetic Advances in understanding the cause of fronto-temporal dementia.
My Wife Maura
Report from the AGM in Nottingham 
Contact Details

Volume 4,#3 - December 1998

Strikingly Different: frontotemporal dementia. 
Attending the Young Persons Day
New Web Site
Penelope's Gossip Corner
The PDSG Year - get out those lovely new diaries
Contact Details

Volume 4,#2 - August 1998

Penelope's Gossip Corner 
Dates for your Diary 
Letter from America by Lynn Erstein 
Information for Carers by Carol Jennings 
My Hero, My Dad by Rachel Beaumont 
Young Persons Day by Carol Jennings 
Our Son Mark by Margaret and Neville Haddock 
Obtaining a Diagnosis by Niki Philcox 
Sex, Sex and No Sex by Penelope Roques 
Looking Ahead: Viewpoint from Philadelphia 
Information Sheets 
Contact Details 
PDSG E-Mail Directory

Volume 4,#1 - April 1998

Changes and Plans in the PDSG 
Dates for your Diary 
Access to our World Web Site 
Kew Gardens 
In Memory 
Les Degenerescences Frontotemporales 
Marilyn Sue Adey Keck 
Request from Matthew Jacofsky 
Spend, Spend, Spend 
Thank you PDSG 
The Hardest Decision 
Information Sheets 
Contact Details 
PDSG E-Mail & Telephone Directory

Volume 3, #4 - December 1997

Letter to the Editor 
Eating 
Diagnoses 
From Richard King 
Please Don't Judge Me Harshly 
Telling the Children 
Update 
Seminar 
Information Sheets

Volume 3, #3 - September 1997

Kew Gardens "Pick-nic"! and Finances by Clare Kelly 
Bits and Pieces by Penelope 
My Ron by Aileen Harman 
The Changing Role by Joan Bradley 
There can be a life after caring by Brian Coop 
European Concerted Action on Pick's Disease by Suzie Barker 
Information Sheets 
Dates for next PDSG Meeting and PDSG Committee Meeting

Volume 3, #2 - June 1997

The CANDID telephone number has changed 
The Committee - Minutes of the last meeting 
A Message from David Hunter, PDSG Chairman 
Appointment of Carol Jennings, Counsellor for the PDSG 
Information Sheets 
Meetings - Dates for your Diaries 
Two Poems

Volume 3, #1 - March 1997

News from the Editor 
Elections to the Committee 
Information Sheets 
Meetings - Reports and Dates for your Diaries 
My husband, Ken Frost by Mrs Joan Frost 
To Dad by Joanne Frost 
Mum by Joanne Frost

Volume 2, #3 - December 1996

Letter and Reply: Enduring Power of Attorney 
Coming to a Decision on Brain Tissue Donation 
International Page: Letters from USA and France 
Home Alone - Cause for Alarm 
Gentlemen Carers 
Kathleen - Time To Let Go 
Meetings - Diary dates 
Report on PDSG seminar, 13 November 1996 
Requests for information and contact

Newsletters that are older than this date are not currently available but it can be arranged for a copy to be e-mailed to you if you want one. Click Here to E-mail us.

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